Involving service users in health and social care research / [edited by] Lesley Lowes and Ian Hulatt.

Includes bibliographical references and index.

Foreword / Philip Burnard -- Introduction / Ian Hulatt and Lesley Lowes -- 1. Theory and practice of user involvement in research : making the connection with public policy and practice / Peter Beresford -- 2. Actively involving marginalized and vulnerable people in research / Roger Steel -- 3. Supporting people with learning difficulties to do their own research / Val Williams and Mouse England -- 4. A hard fight : the involvement of mental health service users in research / A User Focus Monitoring Group -- 5. Translating health policy into research practice / Paula Hodgson and Krysia Canvin -- 6. Foster carers undertake research into birth family contact : using the social action research approach / Jennie Fleming -- 7. From recruitment to dissemination : the experience of working together from service user and professional perspectives / Marion Clark, Helen Lester and Jon Glasby -- 8. Consumer led research? : parents as researchers : the child health surveillance project / Brenda Roche, Phillipa Savile, Daphine Aikens and Amy Scammell -- 9. Consumer involvement in cancer research in the United Kingdom : the benefits and challenges / Tony Stevens, David Wilde, David Kirby, Derek Stewart, Dawn Wragg, Sam Ahmedzai, David Cunningham and Janet Darbyshire -- 10. Community action to housing and health research / Meryl Basham, Diane Stockton and Michelle Lake -- 11. Helping older people to share the research journey / Mary Leamy -- 12. Really making it happen in Wiltshire : the experience of service users evaluating social care / Clare Evans and Ray Jones -- 13. Research with children who use NHS services : sharing the experience / Tina Moules -- 14. From rhetoric to reality : the involvement of children and young people with mental ill health in research / Julia Waldman -- 15. Strategies for involving service users in outcomes focused research / Hannah Morgan and Jennifer Harris -- 16. Working with older women in research : benefits and challenges of involvement / Lorna Warren and Joanne Cook -- 17. Service user involvement at all stages of the research process / Matthew Harris -- 18. Working together to undertake research / Ruth Northway and Paul Wheeler.

"This book argues that service user involvement in research can range from the extremes of being the subject to being the initiator or investigator of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with or mentor to service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. The contributions come from a range of service areas including learning disabilities, cancer care, older people and mental illness, and the chapters look at important research issues such as: strategies for working in true partnership; avoiding 'tokenism'; involving service users at all stages of the research process; communication and terminology; involving service users of different ages and experience; training needs of professionals and service users; problems surrounding 'payment' for service users; and other ethical and practical issues." "Involving Service Users in Health and Social Care Research is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds. It will also be of interest to lecturers and students in health, social care and other applied sciences."--BOOK JACKET.