Involving service users in health and social care research /
Involving service users in health and social care research /
[edited by] Lesley Lowes and Ian Hulatt.
- x, 214 p. ; 25 cm.
Includes bibliographical references and index.
Foreword / Introduction / Theory and practice of user involvement in research : making the connection with public policy and practice / Actively involving marginalized and vulnerable people in research / Supporting people with learning difficulties to do their own research / A hard fight : the involvement of mental health service users in research / Translating health policy into research practice / Foster carers undertake research into birth family contact : using the social action research approach / From recruitment to dissemination : the experience of working together from service user and professional perspectives / Consumer led research? : parents as researchers : the child health surveillance project / Consumer involvement in cancer research in the United Kingdom : the benefits and challenges / Community action to housing and health research / Helping older people to share the research journey / Really making it happen in Wiltshire : the experience of service users evaluating social care / Research with children who use NHS services : sharing the experience / From rhetoric to reality : the involvement of children and young people with mental ill health in research / Strategies for involving service users in outcomes focused research / Working with older women in research : benefits and challenges of involvement / Service user involvement at all stages of the research process / Working together to undertake research / Philip Burnard -- Ian Hulatt and Lesley Lowes -- Peter Beresford -- Roger Steel -- Val Williams and Mouse England -- A User Focus Monitoring Group -- Paula Hodgson and Krysia Canvin -- Jennie Fleming -- Marion Clark, Helen Lester and Jon Glasby -- Brenda Roche, Phillipa Savile, Daphine Aikens and Amy Scammell -- Tony Stevens, David Wilde, David Kirby, Derek Stewart, Dawn Wragg, Sam Ahmedzai, David Cunningham and Janet Darbyshire -- Meryl Basham, Diane Stockton and Michelle Lake -- Mary Leamy -- Clare Evans and Ray Jones -- Tina Moules -- Julia Waldman -- Hannah Morgan and Jennifer Harris -- Lorna Warren and Joanne Cook -- Matthew Harris -- Ruth Northway and Paul Wheeler. 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18.
"This book argues that service user involvement in research can range from the extremes of being the subject to being the initiator or investigator of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with or mentor to service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. The contributions come from a range of service areas including learning disabilities, cancer care, older people and mental illness, and the chapters look at important research issues such as: strategies for working in true partnership; avoiding 'tokenism'; involving service users at all stages of the research process; communication and terminology; involving service users of different ages and experience; training needs of professionals and service users; problems surrounding 'payment' for service users; and other ethical and practical issues." "Involving Service Users in Health and Social Care Research is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds. It will also be of interest to lecturers and students in health, social care and other applied sciences."--BOOK JACKET.
0415346460 (hardback : alk. paper) 0415346479 (pbk. : alk. paper)
2005004163
Medical care--Research--Citizen participation.--Great Britain
Social service--Research--Citizen participation.--Great Britain
Public health--Research--Citizen participation.--Great Britain
Medical care--Research--Methodology
Social service--Research--Methodology
Public health--Research--Methodology
Patient participation--Great Britain
Community Participation
Research.
RA440.87.G7 / I586 2005
362.1072041
W 20.5 / I62 2005
Includes bibliographical references and index.
Foreword / Introduction / Theory and practice of user involvement in research : making the connection with public policy and practice / Actively involving marginalized and vulnerable people in research / Supporting people with learning difficulties to do their own research / A hard fight : the involvement of mental health service users in research / Translating health policy into research practice / Foster carers undertake research into birth family contact : using the social action research approach / From recruitment to dissemination : the experience of working together from service user and professional perspectives / Consumer led research? : parents as researchers : the child health surveillance project / Consumer involvement in cancer research in the United Kingdom : the benefits and challenges / Community action to housing and health research / Helping older people to share the research journey / Really making it happen in Wiltshire : the experience of service users evaluating social care / Research with children who use NHS services : sharing the experience / From rhetoric to reality : the involvement of children and young people with mental ill health in research / Strategies for involving service users in outcomes focused research / Working with older women in research : benefits and challenges of involvement / Service user involvement at all stages of the research process / Working together to undertake research / Philip Burnard -- Ian Hulatt and Lesley Lowes -- Peter Beresford -- Roger Steel -- Val Williams and Mouse England -- A User Focus Monitoring Group -- Paula Hodgson and Krysia Canvin -- Jennie Fleming -- Marion Clark, Helen Lester and Jon Glasby -- Brenda Roche, Phillipa Savile, Daphine Aikens and Amy Scammell -- Tony Stevens, David Wilde, David Kirby, Derek Stewart, Dawn Wragg, Sam Ahmedzai, David Cunningham and Janet Darbyshire -- Meryl Basham, Diane Stockton and Michelle Lake -- Mary Leamy -- Clare Evans and Ray Jones -- Tina Moules -- Julia Waldman -- Hannah Morgan and Jennifer Harris -- Lorna Warren and Joanne Cook -- Matthew Harris -- Ruth Northway and Paul Wheeler. 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18.
"This book argues that service user involvement in research can range from the extremes of being the subject to being the initiator or investigator of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with or mentor to service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. The contributions come from a range of service areas including learning disabilities, cancer care, older people and mental illness, and the chapters look at important research issues such as: strategies for working in true partnership; avoiding 'tokenism'; involving service users at all stages of the research process; communication and terminology; involving service users of different ages and experience; training needs of professionals and service users; problems surrounding 'payment' for service users; and other ethical and practical issues." "Involving Service Users in Health and Social Care Research is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds. It will also be of interest to lecturers and students in health, social care and other applied sciences."--BOOK JACKET.
0415346460 (hardback : alk. paper) 0415346479 (pbk. : alk. paper)
2005004163
Medical care--Research--Citizen participation.--Great Britain
Social service--Research--Citizen participation.--Great Britain
Public health--Research--Citizen participation.--Great Britain
Medical care--Research--Methodology
Social service--Research--Methodology
Public health--Research--Methodology
Patient participation--Great Britain
Community Participation
Research.
RA440.87.G7 / I586 2005
362.1072041
W 20.5 / I62 2005