TY  - BOOK
AU  - Rehmann-Sutter,Christoph
AU  - Müller,Hj
TI  - Disclosure dilemmas: ethics of genetic prognosis after the 'right to know/not to know' debate 
T2  - Medical law and ethics
SN  - 0754674517
AV  - K3611.G46 D575 2009
U1  - 344.04196 22
PY  - 2009///]
CY  - Farnham, England, Burlington, VT
PB  - Ashgate Pub.
KW  - Genetic screening
KW  - Law and legislation
KW  - Genetic counseling
KW  - Medical ethics
N1  - Includes index; The right to know and the right not to know, ten years on / Ruth Chadwick -- Genetic counseling : placing the room in context / Barbara Katz Rothman -- Genetic counselling : clinical settings and constraints / Hansjakob Müller -- Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer -- Communication yes, but how and what : commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter -- The need for an ethics of kinship : decision stories and patients' context / Rouven Porz -- Testing for susceptibility genes : a cautionary tale / Margaret Lock -- "If only I had (not) known that" about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra -- Contribution to disclosure dilemmas in genetic counseling : the symbolic fallout of gene talk / Silja Samerski -- Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair -- How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl and Maximilian Seibl -- Responsibility towards relatives / Michael Steel -- Careful communication of "bad news" : the cancer experience / Wolf Langewitz -- The responsibility of the truth-teller / Thomas Cerny -- Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch and Mette Nordahl Svendsen -- Receiving and interpreting information : a joint enterprise / Jackie Leach Scully -- Without disclosure, no informed choice / Peter Miny -- Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter
ER  -